Making It Through the Day

I'm one to live in the future. I'm always planning, thinking, and dreaming about what's coming next. That's not what I recommend and working on mindfulness is a new goal of mine. Perhaps this has developed from the need to always plan and anticipate. No matter what the day holds, everything to be accomplished must…

A Mutant Without Super Powers

"I'm a Mutant without any super power." That's the little anecdote I often say to lighten the mood when talking about my medical condition.   Until early 2011, I had lived my entire life with a general diagnosis, determined by symptoms and assumptions. Limb-Girdle Muscular Dystrophy. I hit milestones as a baby; I was an…

Use It or Lose It

"Use it or lose it" could possibly be one of the most damaging ideas out there to people with a degenerative muscle disease. The sentiment means that if you aren't moving, you will lose the ability to move. It's not wrong.  Inactivity can cause atrophy. I would guess that anyone who has had surgery or…